Aniridia Day Calls for Understanding of Rare Eye Condition
International awareness day is held to increase understanding of the sight problems faced by people with the rare eye condition, aniridia.
Patients, relatives, researchers and medical experts from around the world have promoted better understanding of the genetic eye disorder aniridia through webinars and shared experiences on International Aniridia Day 2018.
Aniridia is a rare genetic eye condition in which the coloured part of the eye (the iris) does not fully develop.
The iris is a muscle that controls the size of the pupil to allow different amounts of light into the eye. If it is incomplete or missing, the pupil is very large. This means the eye is not able to adjust to differing levels of light, causing sensitivity to light and vision problems.
Vision varies from person to person with aniridia, but can be hazy or blurred, and become worse over time. People with aniridia are prone to losing what sight they have due to other conditions such as cataracts and glaucoma.
There is no cure for aniridia, and there is a clear need to support people with this lifelong condition, who find glare and sunshine debilitating or even painful.
To signify how the brightness and position of the sun significantly affects the lives of people with aniridia, International Aniridia Day 2018 was held on the day of the summer solstice.
The event aimed to raise awareness and increase understanding of aniridia, as well as coordinating international activities, raising funds and encouraging experience-sharing through social media.
Webinars covered topics such as sight loss, surgery, research into possible drug treatments and experiences of further sight loss in adults.
Emphasising the need to advocate for improved care internationally, Rosa Sanchez de Vega, President of the Board of Directors for Aniridia Europe, said: “Every country has different laws but we can work together for the common goals of better care and more research.”
By bringing together the worldwide aniridia community, Aniridia Day 2018 promoted research and stimulated consensus on appropriate care and accurate information on this rare but important condition.
This article was written by a third party source and does not reflect the views or opinions of Ramsay Health Care unless explicitly stated.
Additional comments on the page from individual Consultants do not necessarily reflect the views or opinions of other Consultants or Ramsay Health Care.